My Dogged Hope in these scary times

By nature I'm an optimist and I  believe we'll get through the current crisis. However that belief gets shattered on a daily basis and I start to panic. This usually happens when I'm tired or accidentally hear a news report. I've learned that if I don't listen to any news, not even NPR, I don't…Read more My Dogged Hope in these scary times

Unanswered questions about an uncommon illness

Forgive me for whining, but lately I've been feeling  alone in my struggle with my recently placed Power-Port,  the grape-sized catheter in my chest, that I need for monthly IVIG infusions. The surgery was 3 months ago, and it still hasn't healed. When I showed my inflamed port to a doctor a month ago, I…Read more Unanswered questions about an uncommon illness