Unanswered questions about an uncommon illness

Forgive me for whining, but lately I've been feeling  alone in my struggle with my recently placed Power-Port,  the grape-sized catheter in my chest, that I need for monthly IVIG infusions. The surgery was 3 months ago, and it still hasn't healed. When I showed my inflamed port to a doctor a month ago, I…Read more Unanswered questions about an uncommon illness